Sarah is the parent of two daughters, one with PKU born in 2013, and she thrives at the intersection of advocacy and tech. When her daughter was diagnosed with PKU, she reached out to Virginia Schuett to collaborate, and obtained a grant to develop How Much Phe, which launched in July 2014. She assumed the directorship of PKU News when Virginia Schuett retired in 2015.
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Michael has a backgroud in engineering cloud and system architecture with a focus on operational reliability. More than once, he’s been accused of breaking the entire internet, which he says is only hearsay. Attached to the inherited metabolic disorders through close friendship, he couldn’t be more excited to join flok.
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Kristen is a specialist in business operations and non-profit leadership. When her son was born with PKU in 2006, she saw an opportunity to apply her professional consulting experience to helping metabolic patients and families. In 2008, Kristen co-founded Georgia PKU Connect and has had the honor of serving the newborn screening and genetics community in various roles. She’s a flok super fan and looks forward to connecting with you.
Jennifer was a dietitian at St. Luke’s Health System in Boise Idaho from 2005-2019, specializing in metabolics, cystic fibrosis, and the ketogenic diet. She has served in both the Meridian and Boise NICU, peds/PICU, peds onc, cardiology, nephrology, GI, trach and vent, and other sub-specialty areas.
Nikki has a background in health education and is a certified radiation therapist. She is the parent of two children, including one with Argininosuccinic Acidemia (ASA) a urea cycle disorder. Nikki found a home within the Cook for Love community when her daughter was born, and has been a consistent user and supporter of How Much Phe and GO LOW PRO as well.
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